Note from Ana: I was recently made aware through a friend that February 29 is Rare Disease Day. This friend has a child with Pulmonary Hypertension, considered a rare disease and one for which there are no therapies available for children yet. I invited her to share with us her family´s story with this rare disease. Our son, Lucas Miles Van Wormer, was only four years old when he was diagnosed with Idiopathic Pulmonary Hypertension in November 2006. PH isRead More ...
